How can the world’s largest biomedical research funder engage the public in shaping its priorities? In this white paper, we explore how the National Institute of Neurological Disorders and Stroke (NINDS) created a transparent, repeatable model for public participation using IdeaScale. Learn how structured feedback can reduce duplication, strengthen trust, and transform frontline insights into actionable research roadmaps.
Key Takeaways:
- A new model for public engagement – How NINDS used IdeaScale to build research roadmaps.
- Building continuity – Why lasting infrastructure matters for consistent, scalable participation.
- Expanding participation – Case studies like the BRAIN Initiative and ME/CFS Research Roadmap show how external input shapes research.
- Infrastructure pillars – Technology, processes, and oversight ensure public engagement is both collaborative and secure.
For research leaders, policymakers, and advocates alike, this blueprint demonstrates how structured public engagement empowers stronger strategies, faster outcomes, and measurable impact.
